Jax's Story

Everyone has some sensitivity to sunlight. It's the reason we tan or sunburn, get sun freckles, or even skin cancers.  But when this sensitivity turns extreme, xeroderma pigmentosum (XP), a rare skin disease, may be the culprit.  

The outdoors can be catastrophic to those with XP.  People with this condition need to be covered from head to toe, and even the simplest slip of a sweatshirt cuff could prove dangerous.

Because the body cannot protect itself from UV light, a person’s risk of getting skin cancer skyrockets. It’s estimated that XP can raise the risk of getting skin cancer 10,000-fold.  Most children with XP are diagnosed with skin cancer before they reach 10 years old.

This is Jax's story.

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